Tuesday, October 13, 2015

Both a Savior and a Killer

Even though I am completely aware of the multiple co-morbidities my mother possessed prior to death, I can’t help not feeling that a drug that was given to her to save her life was the actual cause of her death. What was the drug?
Brilinta: A drug given to patients after a heart attack of heart surgery to prevent a heart attack and/or stroke. The drug is supposed to prevent the formation of blood clots.

But as we all know, the most well intentioned and high performing drugs come with possible adverse side effects that can even lead to death. And sadly, my mom fell prey to the most adverse side effect listed on the website for the drug. https://www.brilinta.com/safety-and-side-effects/side-effects.html

My mother died of acute blood loss, which I believe was caused by the Brilinta. Prior to being diagnosed with Brilinta, she had no trouble with major bleeds in the GI track. But since March, almost a month after having heart surgery and being prescribed Brilinta, the episodes of acute blood loss started occurring quite frequently. The doctors would stop the blood thinner (Brilinta), but would warn us that she could have a stroke or a heart attack for not being on the drug. Then once the bleeding was under control, they would put her back on the drug to prevent a fatal cardiac event. But what would happen a month later? She would be bleeding internally all over again.

It was an awful see saw of treatment methods to try to save her life. If she didn’t take the medicine, they were sure she would die. If she did take the medicine, they weren’t sure of much. I say this because they could never track the bleeding. They would just give her blood transfusions until the blood count would increase and then hold steady at a manageable level.

This most recent time, her blood loss was massive. She had lost so much blood, the doctors were shocked she was still alive. The doctors said she was surviving on a fourth of what a normal person has in their body. They told us she needed five pints of blood products transfused in her body to save her life.

But my mom guaranteed her death by refusing to continue with another round of blood transfusions. This time, she said no to any medical interventions to save her life. The doctors still had no clue where she was bleeding from. And my mom was tired and ready to go. So, the doctors respected her wishes and sent the blood products back to wherever they came from. And less than 24-hours later, my mother was dead.

My heart grieves as I write this because I know that Brilinta, the drug that the docs gave her to save her life, was the drug that ended her life. How freaking ironic?

I’m not mad at the manufacturers of the drug though. I’m not mad at the doctors that prescribed the medicine. I’m not even mad at my mom for refusing the blood transfusions.

I’m just mad. Not sure at what or who though…

I’m for sure mad that my mother is gone.

I wish there was no need for Brilinta. I wish that my mom never needed a blood transfusion. I just wish that my mom was healthy, well, and right here with me.

With all of that being said, I do plan to report to the FDA that I believe that my mom died because of the adverse effect of Brilinta. I think it is important for the FDA to keep a documented count of the patients that did not respond well to this drug.

Here’s the FDA website that I’m using to make the report.
http://www.fda.gov/Safety/MedWatch/HowToReport/ucm337471.htm

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